Navigating Emotional Overwhelm

The best thing I have done for my overall health is to learn how to manage my stress. In fact, I searched for a medical practitioner who didn’t tell me “not to stress” but to learn techniques to help manage it instead. (My search took me more years...

Finding the Message Within the Mess.

Well-meaning people tell me all the time that God won’t give me more than I can handle. I just don’t think that’s true. I appreciate the sentiment. I know it’s meant to make me feel better about the special needs/medically complex life we now reside in. I believe that...

Are You Satisfied?

When your child is in clinical trials, you become an expert at filling out surveys. One survey that I dreaded every month for almost 2 years was a Duchenne parent survey. The questions were simple by design but deceptively difficult. One of the typical questions I was...

Cracked But Not Broken

Kintsugi is an old Japanese technique used to repair broken ceramics with a special lacquer mixed with gold, silver, or platinum. The ideology behind this practice is that nothing is ever truly broken. By fixing the piece, you can see this original integrity of that...