Cultivating Friendships

One of the hardest things about being a special needs mom, especially if your child needs a lot of 1:1 assistance, is carving out quality time for others. Friendships will suffer if you aren’t careful and don’t intentionally work at them. The sad, hard truth is...

Are You Satisfied?

When your child is in clinical trials, you become an expert at filling out surveys. One survey that I dreaded every month for almost 2 years was a Duchenne parent survey. The questions were simple by design but deceptively difficult. One of the typical questions I was...